Introduction Blog

We are college roommates, while we may look normal on the outside that is far from the truth. We both have rare medical conditions that even after years of tests, hospitalizations, and different treatments doctors are not completely able to understand or treat. I have half a heart on the right side of my chest caused by Polysplenia syndrome, Ehlers Danlos, which is a connective tissue disorder which causes constant dislocations, and severe scoliosis. My roommate has Satoyoshi Syndrome which is an incredibly rare autoimmune disease. This effects every aspect of our lives.
The reason we are writing this blog is that there are many people out there, either diagnosed or not that may seem normal but struggle with their medical problems on a daily basis.

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