I am Vulnerable
I am just like any other 25 year old. I love my family, I love my dog, I love spending time with my friends, I am getting my masters degree, and I have hopes and dreams for my future. The one way that I am different from a large part of the population is that I have Ehlers Danlos, POTS, but most importantly I have Heterotaxy. This is a big word, but essentially I have multiple spleens, my heart is on the right side of my body, it is flipped, meaning the left side of my heart is where the right side should be and so on. I also only have the left side of my heart, as the right side is underdeveloped and nonfunctional. To date I have been through two open-heart surgeries, two eye surgeries, two feeding tube placement surgeries, and countless feeding tube changes. Given everything that I have been through I can honestly say that I have never been so scared in my entire life. I am very vulnerable. Most likely if I get COVID-19 I will die. I know it, my docto