The Medical Dorm

The topic for this post was given to us as a suggestion from one of our readers. We are always looking for suggestions because we want the blog to be about what people want to read about. If you have a suggestion you can either leave a comment or send us an email at unansweredquestions111@gmail.com. This week we are taking on how people can be an ally. The world is not people with disabilities against people that do not have disabilities. The reality is that in an ideal world there would be no difference, we would not have to fight Hydra. If you are confused Tremors has recently brainwashed me in to watching Agents of Shield, and yes that is where we get the name Tremors from, but more importantly is where we got our title. As you may have guessed if you watch Agents of Shield or any Marvel movies our post might be slightly easier to follow but if not we are going to explain. Sorry if you don’t watch and we end up giving you a new obsession. First thing is that you need to under...

We have both had our illness be invisible as well as visible. My condition was invisible until about a year and a half ago when I began limping, falling, and needing to use accommodations in school. Tremors' condition is invisible after treatment as long as she keeps her wig on, however, before treatment becomes visible when she begins to jeebie (our first post explains what a jeebie is). Below are things that have been said to either one of both of us that we want to address because they are NOT true of us or anybody else. The fact that people feel that these are appropriate to say means that ablism is alive and well even in 2016.  "You are broken" There are two different definitions of broken. The first is "having been fractured or damaged and no longer in one piece or in working order." This is referring to a condition such as a broken arm, which I promise I do not have, well at least at this point in time.  The second definition is "having giv...

When you walk in to the hospital and see a child laying in the bed you automatically feel bad for them but do you ever stop to look at the rest of the room. What you are not noticing is perhaps their sibling sitting in the corner, ignored, not making a sound. Everybody is always focused on the child that is sick which makes sense but that sibling in the corner is a person also.  We both have siblings that have been effected by our conditions. The reality is that any time there is a family member that is sick they automatically come first, they have to. The problem with this is that putting a child that is sick first for a few days until they get better is one thing but it becomes a lot more complicated when that child will never get better. This means that they come first, and will always come first. This creates a dynamic that is hard for the entire family.  I know about the sibling sitting in the corner of the hospital room because many years ago that was my sister. When ...

Hi Everybody, We have not been posting as often on the blog because we have been trying to reach out to raise awareness for more people. To try to create a community we have a group on Facebook, as well as a twitter page. We will be actively communicating on all platforms, because lets be real, WE ARE SUPER EXCITED ABOUT THIS. We would love to hear from you. We will take suggestions for what you want us to post about as well answer questions that you have. While we have an interesting story the best way to really create a community is to hear from everybody. If you want us to post something on our blog you can also email it to us and we will post it and give you credit if you want. Our Facebook group is just for people that either have a chronic illness, or have a loved one with a chronic illness. If you are undiagnosed but live with a chronic illness you are more than welcome to join our group. We ask everybody a few questions to make sure that the group remains a safe and suppor...

Tremors here.  Part of a parent’s job is to stand by their kid--no matter what.  They are suppose to pick up their kid when they fall down, make sure they are safe, stand by them when they are in need.  My parents were put to the test a few years ago.  (That’s putting it lightly)  I started having muscle spasms on my left side, and one day I fell off my lab chair at school.  I mean that was just a fantastic day in physics.  My parents were worried that I lost consciousness since I did not remember falling during class.  I could tell you what happened I was doing during the lab.  One minute I was on the chair, and the next I was on the floor.  I was taken to the ER and then I was taken via ambulance to another hospital.  I then spent a weekend connected to various wires and machines.  My parents and I were then told that I was making everything up and that it was all in my head.  Overall, it was a great weekend.  I w...

Hi, Nemo here. I am posting by myself today because tremors is still receiving treatment, and it has not been as kind as we all would have hoped it would be. This blog is an overview to my story. Doctors said that it was over before it even started, my mom was told that I was absolutely going to be stillborn. If you don't know what that means, it means that I would never see my first breath. Instead of trusting what the doctors had to say, my mom decided that no matter what I had she was going to deal with it, and even if I didn't live at least I would have a chance. Similarly, I have a healthy twin and terminating me would have most likely meant having to terminate her as well. This is no longer the case but when I was born it was. After my mom tried to have kids for 10 years there was no way she was about to give up. Well clearly I did not die. When I was born there were 13 doctors in the room just in case I managed to breathe, well I did. I did not need to be put on a ven...

Tremors here.  Currently I am writing from my hospital bed, but before you freak out, it was planned.  I receive infusions every five weeks.  Most people say something along the lines of "every five weeks isn't too bad" or "it gives you a lot of free time."  Yes because giving up every fifth weekend is something I love doing.  I mean I have been doing this for a little over a year now.  Of course I would rather be hooked up to an IV pole for hours on end instead of hanging out with friends.  I receive an infusion of IVIG, which amazingly stops the muscle spasms that I have for four to four and a half weeks.  I would explain how this all works, but the doctors don't know, so I don't know.  Being stuck in a hospital bed for any stretch of time is no fun.  I think that anyone who has spent time in one will admit that. For me a weekend of IVIG consists of... Getting to the hospital at 9 am Hoping to get into a room before 12 pm Crossing...