We are two college students (and a service dog) with a host of medical problems. Medical journals say one thing, but we say something else. Lets be real, we are much more interesting and will tell you not to let anything hold you back,
live your life the way YOU want!!!
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A GIANT Thank You to Nurses Out There
In the past we have thanked some of our doctors for all they have done for us. These doctors have given us our ribbons, stood by us, and treat us like human beings. Now, we want to thank more individuals who have changed our lives. We have spent the past week and weekend in the hospital surrounded by amazing nurses. Tremors was in over the weekend for a scheduled infusion. Nemo was in and out of the ER this weekend, and is still in the hospital. Without nurses, we would not be able to survive our times in the hospital for sure. This is a GIANT thank you to our nurses. These individuals are the ones who are always there for us, and always seem to know the right thing to do.
Thank you for becoming a nurse, because I honestly do not know what I would do without you. You do more than check vitals and give out medications. You are the one who is constantly in and out of the room. You are the one who is making conversation and seeing if I am truly okay. Thank you for the small talk. Even though you may have come into my room to do a vitals check, you end up telling me about your all time favorite movie. You end up helping me with my work, you listen to my problems, and offer advice. While telling stories you take out your phone and show pictures of your family. Thank you for showing me vacation pictures, treating me as a family member, or friend instead of a person in a hospital bed. Being a frequent flier, I look forward to our talks.
Thank you for standing up for me. You are the one who knows me better than the doctors and other specialists in this place. You are always in my corner, even when I think that I am all alone. You always are the one I can count on to have my back, and I trust that you know what is best for me.
Thank you for sticking around, even when I am annoying. I know my machines go off constantly. (Tremors: IV air bubbles and Nemo: heart monitor) You are always there to help, and know what to do. You are the one that helps to sneak me out of the room when I am bored, or give me the latest gossip. You acknowledge that I am watching the same movie on repeat, but do not judge (at least not to my face).
Together we want to thank all of the doctors in our lives that have made a lasting impact. We say thank you to our favorite nurses (you know who you are). Thank you for being someone that we can trust and count on. Even though you may never see this letter, we want to say thank you from the bottom of our hearts for everything you have done for us. While you think that you are simply doing your job, in reality you are doing so much more, you are helping to change our lives for the better. Thank you for being the true heroes of the hospital.
WE BELIEVE IN YOU, LIKE YOU BELIEVED IN US! -Nemo and Tremors
Let’s be honest here, dating can kinda suck. I mean, it is really hard to find that perfect someone when you are in college like us. We both know that miracles do happen, but when you have a chronic illness it becomes a million times harder. There are a lot of things that make this more difficult. Dating is already hard enough, so when you put chronic illness with trying to find a decent human being, you have a bit more trouble than the normal person. Here we decided to discuss our dating / lack of dating lives. Because we know from experience that it is super hard to find someone when you are chronically ill. Let’s just say that while we hope to find someone one day that can see our good qualities, we know that may not happen. For many people with chronic illness it can be difficult to leave the house. This leaves online dating. Just like any “normal” / healthy person, you can find some creeps while dating online. Let’s just say that we have met quite a few of those onli
We are both college students, and in college we have had both good and bad professors. Some professors are amazing, while others make you want to hide in your room and never leave your bed. Sadly, we have had a few of those in the later category. We decided today to discuss some memorable quotes from professors in both of those categories. We are not doing this to be cruel, and we are not including any names, or descriptions. We are doing this to show how tough college can be for those with chronic illnesses. THE WORST: These are some things that were said to us over the past few years. While not all sound rude, or insensitive at first, the meaning behind them are not great. “It’s so nice that everybody here [in this class] is healthy” The first thing you have to know about our class is that multiple people have accommodations and I (Nemo) bring a service dog to class. We are not the only ones with accommodations, or medical problems in o
First off, we know we have been radio silent for an extended period of time. We apologize, but in our defense we were trying to survive college. Add in a handful of medical problems, clinicals, (attempting to have a) social life, and it gets busy. We are proud to report that our hard work during our absence paid off. We are now both college graduates, we have a year until we get our master’s degrees, and we are both at the moment doing as well as we can do medically. All in all, we are pretty happy with where we are in our lives at the moment and decided that in our newly discovered free time we could start up the blog. A brief update on Nemo: It’s been a busy year. I have been through 12 surgeries in the past year (mostly occurring between August-December of 2018) in order to place a feeding tube for gastroparesis. Long story short, I now have a J-tube and receive medications and the majority of my food via J-tube. If you are wondering why so many s